2 years ago, I woke up without the energy to move myself physically out of my bed. I did not work for 6 weeks and was wheelchair-bound while a multitude of medical tests were done. All results negative except for one blood test, Anti-Nuclear Antibody (ANA) which suggests the potential for an Auto-Immune Disorder. Negative results are 0-10, positive results are 15-40 and my result was 640. My internal organs (brain, heart, lungs, liver, kidney, pancreas) are healthy. I generally do not have any physical pain, just low energy.
I live alone. My food preparation is limited to anything that does not require standing for more than a few minutes. I take sponge baths instead of showering. I use a motorized cart in the grocery store. Outside of work and home, I use a front-wheeled walker. I work 3 days per week, with 1 day between each work day for resting and knitting.
Knitting is therapeutic because it engages both brain hemispheres and is calming to us. Psychotherapy ended in 2014, after 12 years of intense work. I am co-conscious except when I am not. I have been co-conscious for 5 or 6 years now. I have one close friend. My immediate biological family is not supportive. The totality of who I am is unknown to most who interact with me.
I experience much anxiety when I need to interact with the world outside of me in any way. It is difficult to take out the trash or to go to the laundromat or text my landlord or return phone calls and many times it just doesn’t happen. I am fully aware that how I live day-to-day is outside the ‘norm’ and is upsetting to many. I know I am better when I am not spending the majority of my time alone but I do not know how I can facilitate and find safe people. I make a decent friend. I have a great laugh and enjoy laughing. I am loyal, generally positive and accepting of others.